One family sharing challenges, discoveries, defeats and victories while confronting this terminal condition.
Aug 5, 2013
Day 5 after being Kicked off Hospice by Medicare
Gary was kicked off Hospice last Tuesday, so I went aggressive because he's been saying he's ready to get moving. So we moved him to a HealthSouth Desert Canyon acute rehab hospital last Wednesday. After the last horrible experience, with a "skilled" facility, none of us are willing to compromise his safety even if the place is safe, so we're tag-teaming his waking hours with each of us being with him in 4 or 5 hour shift throughout the day until he is discharged. The timing was perfect as Traci and Sami are both between commitments for a short time, anyway, then we can work his new routine around ours as school starts, etc. He's really doing very well! He will still be between wheelchair and walker, but he's regaining leg strength and is re-learning how to do some of his own dressing and grooming after his long therapy-less hospice hiatus, and the speech therapist is hooking us up with a Dynavox device to help him work through the vocal changes he's experiencing and maybe be a little less frustrated. We'll learn about how that will work, tomorrow. Finally some positive progress to a better plateau!
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