Gary is 70, officially diagnosed with Lewy Body Dementia in September, 2012, though in retrospect, we now know symptoms first started rearing their ugly head as far back as 2003. The severe symptoms started revealing themselves in Nov/Dec 2011, starting with sleeping problems--the kind that can't be explained...getting up in the middle of the night and not being able to figure out how to lay back down on the mattress. I'd wake up in the middle of the night with Gary sleeping across my body, head or feet at a right angle to me with either laying across my legs, or to him climbing out of bed over top of me. Bizarre, like in a bad dream that neither one of us could make sense of the next morning.
Jan 1, 2014
Dec 9, 2013
December 9 - Back on Hospice
Gary is back on Hospice, and he is getting steadily worse. He still knows who we are, but is rapidly losing the ability to do anything at all for himself, and doesn't walk more than 10 steps with two people helping. I've been trying to convince family members to come see him while he will still know them, and is aware enough to know they're visiting. The dementia is taking a stronger hold, and the infections set him back. He's hard to keep hydrated and his appetite is down by a lot, so keeping weight on him is a challenge. We're keeping him home with people coming to the house when we can't be there, and Hospice is sending a nurse once a week minimum, plus nurse assistants 3 days a week to help with personal care--showering, etc, and he'll be getting massage therapy once a week. We've asked for any additional services we can get him to help him stay comfortable.
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