Gary's home again as of this past Saturday afternoon. He's on a continuous pain pump with Fentanyl (converted from patches that he wasn't absorbing well). He's up from 25mcg/hour to 37.5mcg/hour with bolus doses of an additional 20mcg every 15 minutes if he needs it. His arm circumference has dropped to 26.5cm. The contracted muscles have improved in his right arm. His left arm and both legs continue to worsen. His temples are even defined now, he's lost so much weight. Still sleeping 20+ hours each day and eating very little. Seems to perk up a bit in the evenings and has very brief conversations before going to sleep between 9 and 10.
Hospice doesn't see any issues with continuing services when he's up for recertification again the first week of April. I have no idea what we'd do without them.
It's good to have him home again, in any capacity. The house is so empty without him. We've had a good preview of what life will be like after he passes, and it is quite depressing and empty.
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