One family sharing challenges, discoveries, defeats and victories while confronting this terminal condition.
May 20, 2014
May 20 - Scary Day
HARSH shape today. Last night Gary was up late enjoying an ice cream
sandwich and chatting. This morning, extremely severe rigidity and can't
respond at all, and can hardly open his eyes, though we know he's
awake. I think he's paying for 2 10-12 hour days of awareness in a row,
but his respirations have dropped. Pulse and BP seem to be hanging in.
Again, nearly 70 lb. weight loss since November, completely bedridden.
Up til 2 days ago, sleeping 20-23 hours a day, then the 2 day surge, and
now this, and we're not able to get him to even try to swallow any
medication at all today. No
medication changes caused this. I am firm on that. He is home with Hospice assistance, with
me, our adult daughters and one excellent regular caregiver who we
consider part of our family now.Can never tell...so devastated this morning,
but he seems stable for the moment. Just never know what to think and
the uncertainty is terrifying!
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