After 10 solid months of decline and complete dependence for all ADL's (Activities of Daily Living) Wednesday, Thursday and Friday this week, we had a wonderful honeymoon of alertness that peaked between Thursday evening and Friday with my husband pressing his own call button, feeding himself dinner and drinking coffee on his own on Thursday night, then feeding himself breakfast and reading the paper on Friday morning. Then between Friday at lunch and Saturday at lunch, he gradually became a complete feeder again, and when I arrived at 1pm yesterday, he was back in his coma sleep, completely unrousable through and after 7pm, when I finally left. It was wonderful while it lasted. Complicating things, it coincided with a move from an acute wing at his facility, into the Memory Care. The staff at the Memory Care was taking his increased cognition and activity level at face value, thinking that was his current status...I repeatedly told all shifts I could be in contact with that this was temporary. They couldn't believe it yesterday when he slipped back into unresponsiveness. Now they fully understand...
One family sharing challenges, discoveries, defeats and victories while confronting this terminal condition.
Sep 27, 2014
The Rally/Surge is Gone - Hoping Temporarily
After 10 solid months of decline and complete dependence for all ADL's (Activities of Daily Living) Wednesday, Thursday and Friday this week, we had a wonderful honeymoon of alertness that peaked between Thursday evening and Friday with my husband pressing his own call button, feeding himself dinner and drinking coffee on his own on Thursday night, then feeding himself breakfast and reading the paper on Friday morning. Then between Friday at lunch and Saturday at lunch, he gradually became a complete feeder again, and when I arrived at 1pm yesterday, he was back in his coma sleep, completely unrousable through and after 7pm, when I finally left. It was wonderful while it lasted. Complicating things, it coincided with a move from an acute wing at his facility, into the Memory Care. The staff at the Memory Care was taking his increased cognition and activity level at face value, thinking that was his current status...I repeatedly told all shifts I could be in contact with that this was temporary. They couldn't believe it yesterday when he slipped back into unresponsiveness. Now they fully understand...
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